Tuesday, July 18, 2017

7/18/2017 Surgery date is set

      We have set a surgery date for 8/2/2017. We are still unsure what surgery she will have but will be meeting with Dr. Mery, her surgeon, the day prior to go over everything. She is doing so great. Such a happy baby that can be silly. She is sitting, laughing and trying to crawl but not quite there. Chris left for Asia Sunday and will be there for the next two weeks. I have family coming to stay with Angelica and I. I am not sure how long we will be in Houston this time around but the scheduler said plan to be in the hospital for a minimum of a week and stay in the Houston Area for a week. Lots of prayers Angelica continues to grow big and strong and that she will recover quickly from surgery.



Monday, July 10, 2017

July 10, 2017








Angelica is doing well. She had a heart cath and transesophageal echo preformed Friday. The only time she cried was when the IV was removed. She is a champ. We had to stay at the hospital for 6 hours after the procedure so that she could heal. It was a long day but Angelica just slept and relaxed for the most part.  The doctor told us they will review all images and will discuss next best steps. At this point they are still evaluating if she would be a candidate for a double ventricle repair. Surgery will most likely take place in August. A double ventricular repair would mean only one more surgery and she would be more likely to participate in sports as she gets older. Also, life span is longer with successful double ventricular repairs. However we are not certain her mitral valve can handle that type of repair. Texas Children's is the best in the country so we have faith in their team and decision.

We stayed the night in Katy and drove back to Austin Saturday.  When we got home Angelica decided she wanted to be more mobile. She rolled over on her tummy and started trying to crawl. (Previously she has hated being on her stomach because of her g-tube.) Crazy child gets done with a heart cath and is up trying to crawl the next day.  She is so strong and continues to amaze us daily.