Our baby turned one. We can't believe that a year has passed. She has overcome so much in her short little life. It's crazy to think a year ago today we were at Texas Children's in the NICU waiting for her first heart surgery. I wish I could go back in time and tell myself "it will be okay". "Enjoy those newborn noises and snuggles."
We had a wonderful week with family celebrating her birthday. During the week Grandma and Grandpa Helberg came to visit her in Austin. She was spoiled with lots of love and affection and on her birthday she was spoiled with presents. She loved her tricycle, we have to hide it from her because when she sees it she fusses because she wants to ride it. For the weekend we went to Corpus to visit Grandpa Perez, Uncle Tony, Aunt Aimee, Tia Elvira, and cousins. She was not a fan of cake but loved auntie Aimee's pumpkin cupcakes.
We received good news!!! The MRI results showed the cochlear nerves are present and going into the cochleas which means she is a candidate for cochlear implants. It is very exciting but it we won't know what this means for her until after she has had them for awhile. Cochlear implants can be helpful for some and not helpful for others. I am very nervous for her to be under anesthesia once again. Baby girl has been through so much and it can be overwhelming as the parent. I know she is a strong girl. The recommendation is to have surgery as soon as possible. We are currently scheduled for December 7th. Her heart is stable at this time however cardiology has stressed the importance for her to remain healthy. RSV and flu are now being seen in the community. This also makes me very nervous to go to a hospital during this time of year. The doctor has reassured us it will only be for one night and she will not be on a floor with sick children. She will be on a surgery recovery floor. Lots of prayers for a successful surgery and to remain healthy through it all.
Christmas is just around the corner and we can't wait to spend it with her. She is going to love all of the lights. Mommy is already getting started on Christmas decorations :).
Thank you all for your support.
God bless.
Amanda and Chris