We were discharged today and are home! Feels so good to be home. Angelica is doing great. You wouldn't even know she had two surgeries in the past two weeks. The g tube is easy to use and Angelica is continuing to do well with taking the bottle. It's nice to get the NG tube out of her nose. We have several follow up appointments to schedule. The hearing test done at the hospital showed Angelica does not hear and the hearing devices we hoped could help her will not be helpful. She has internal structures but they are not picking up sound. Next surgery will be on her heart and can be anywhere from 6 - 8 months. Then we can focus on other options for hearing. There is some new technology out there known as auditory brain stem implants It is just now being tested on children. At this point and time Angelica is deaf. This was very upsetting to us but I have faith in Gods plan. Knowing that God has blessed with such an amazing child. She is so sweet. So fun to watch her take everything in that she looks at. She loves watching tv, looking at lights and snuggeling 😊. We are so very in love with our baby girl and so grateful to be given the opportunity to raise such an amazing little one.
I will continue to update this blog with doctor visits and updates on Angelica. Thanks for the love and prayers!
Amanda, Chris and Angelica
Those legs look delicious!!! LoL! Adorable!!! So happy ya'll are home!
ReplyDeleteThose legs look delicious!!! LoL! Adorable!!! So happy ya'll are home!
ReplyDeleteSo glad you are home!!!!! Both of my girls took sign in school we played the TSD in ball the other night ! It was such a blessing watching the little kids 2 and up sign and preform. They were doing cheers and gym routines in half time. She is a blessing and will bless all that surround her. She is beautiful, loved and will go and do great things! You are a motivational person Amanda and I know you will take her to the top in everything. When you get settled and are up to company some time let me know would love to see you!!!
ReplyDeleteShe is so cute, and look a lot like Daddy. My boy had the same binky from the NICU. Keep it for her to look back when she grows up. she is a trooper, and has great loving parents. God bless all of you.
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