November 22, 2016

Surgery for pulmonary band placement was this morning. We were notified yesterday.

ENT scoped her to verify epiglotis formed properly. This was one of the many concerns. They said although malformed it is not bifurcated as originally suspected. They stated it should not create any feeding issues.  As she has already been feeding and taking bottles we suspected this. Still good news to hear. We will continue to follow ENT outpatient for hearing work up and probable hearing aids.

Cardiovascular surgeon  stated surgery went well. He did not do a transesophageal echo (image of the heart) so was not able to obtain more imaging of her heart. We are still unclear what her big surgery will entail. We are praying for a double ventricle repair in the future. Today's surgery the pulmonary band was placed loose so that she can grow into it. The hope is the band will get her to 9 or 10 months. Time will tell. She will be in the cardiovascular ICU and as she improves will hopefully moved to a floor. Once on the floor it's a waiting game. Just waiting to see how well she feeds and grows. She is resting peacefully at this time. She will be allowed to come off medication and hopefully extubated tomorrow morning.