Woke up today feeling a bit defeated. Yesterday was a rough day for Angelica. She was hungry and in pain. It is very difficult to watch your child suffer and there is nothing you can do to help. Today was a much better day. Angelica is feeding and sleeping. She was slightly fussy but was able to rest. She had her drainage tube removed, her catheter removed, was taken off oxygen, and moved to a new bed. She still has her oral feeding tube. OT plans to work with her on feedings so that we can remove the tube from her mouth. She still has an IV. Pulmonary band seems to be doing well. Next step will be moving to the 15th floor where she can grow and heal.
We spent thanksgiving with the Ronald McDonald house and their families. Had some good food and good conversations. These people are quite amazing. Their stories are so inspiring.
Very grateful for all our family and friends that have helped out. Thanks for all the prayers and kind words. We are thankful for all of you.
Beautiful! Glad she is doing well.
ReplyDeleteShe's beautiful love, hugs and continued prayers sent your way
DeleteThank you for keeping us updated. She is beautiful and perfect, we can't wait to meet her and love on her. In the meantime many prayers and positive thoughts being sent your way. She is made of tough stuff and will continue to thrive and grow into a wonderful child. We love and miss you guys.
ReplyDeleteHugs to you all.
Michelle, Scott, Kaleigh, Ben and Pat