Our little one turned 4 months old on March 9th. She is doing great. Gaining weight and growing so chunky. We followed up with cardiology in Houston and were told her heart is stable. Her mitral valve and left ventricle have not grown so it is looking more like a single ventricle repair. More info on single ventricle repairs: http://pediatricct.surgery.ucsf.edu/conditions--procedures/hypoplastic-left-heart-syndrome.aspx. Her next surgery would be the Glenn. She has a functioning left ventricle however with her mitral valve being small it would most likely not be able to keep up with the work load of the heart if we moved forward with a bi ventricular repair. Not what we expected but these surgeries have been going on for over 30 years and are very successful. We know Angelica is so strong and will continue to amaze us with recovery and what she can do.
She is seeing PT, OT and speech therapy weekly. This is to help her with her torticollis and developmental issues that often arise with cardiac children. She is a busy girl working on stretches daily.
She loves looking at lights and tracking things. It has been so fun to watch her grow and continue to develop. We have been very busy with doctors appointments and therapist but we are so amazed and in love with our baby girl.
Chris and I are learning sign language. We are taking an online class Monday evenings. We were told by one of Angelica's many specialist it is best to start learning now because she may pass us up once she starts learning. We are so excited to learn a new language and become a part of the deaf culture. We encourage all our friends and family to learn as well. There are videos on youtube if you search BRAVO ASL. They are great. They are not the entire video as we get with the class but should be helpful.
I will try to keep up with the blog monthly. The Helberg family is doing great and we are so very in love with our baby girl.
She is sooo beautiful!
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