June 2017

Angelica is doing great! She loves to swim in the pool. Well, float in the pool. Her little personality is really coming out. She is quite, shy and very inquisitive. She loves watching the dogs and thinks Sophie is funny. She is growing and giggling often. We have continued to follow multiple specialist and recently had a sedated hearing screen, MRI and CT. The hearing screen confirmed that she is profound deaf. The MRI did not show hydrocephalus and the CT confirmed abnormalities typical of her condition however the Neurosurgeon stated these abnormalities should not cause any issues. ENT is wanting to obtain more images to further evaluate if she will qualify for a cochlear implant. Chris and I would love for her to hear if it is an option however we are also very excited to learn sign language and embrace the deaf culture. She is currently seeing the school for the deaf once a week. She has speech therapy, physical therapy and occupational therapy weekly. She is a very busy little girl. We are just having fun and enjoying every second we have with her. We will be returning to TCH next week for heart cath and to discuss upcoming surgery. Lots of prayers that the heart cath goes well. Surgery is projected for end of summer. I have been very anxious for this and although we have a wonderful sleeper mommy is not sleeping with all the anxiety of whats to come. I am so very grateful for every day I have with her. She is such an amazing little girl. God is good and we are so blessed to have her in our life. I will update this blog once we have the results from the cath.