Friday, August 4, 2017

Post op day 2 morning

Angelica is doing good. She has been able to feed so she is quite content. When we sit her up she has some discomfort so we have continued morphine and Tylenol. She is currently sleeping. We got extubated yesterday. Her Glenn line (arterial line in her neck) was removed last night, her arterial line was removed, her foley cath and rectal probe were taken out as well. We were switched to nasal cannula from high flow oxygen. What does all this verbiage mean? She is doing well and has less lines in. Currently we still have two IVs, a femoral line and a drain. Vital signs look good. Hoping to be moved out of the intensive care unit today or tomorrow. One of the floor docs just came in and said we can remove the femoral line 🤗 .   That means we may be headed down to 15 sooner than I thought. The 15th floor is one step closer to going home and we can stay overnight with her. I read back through my blog and realized I never stated what type of surgery she had 🤦🏻‍♀️.  She had the Glenn. It is the second surgery in a three surgery palliative repair. "Palliative" means this is not a cure but only extending her life. They have only been doing these types of surgeries for the past 30 years. There are individuals living to their 30s but we do not know beyond that. Angelica's heart is not the typical anatomy for this type of repair. She is very unique. She is a strong single ventricle but I am not sure what that truly means. What I do know is Angelica is so strong. I have faith God has a purpose for this little girl and it is in his hands. This experience is so very humbling. We had a nurse yesterday with a son with Down's syndrome. He has a heart condition as well. His heart was not suppose to make it past 4 years old. He is 22 and not on any heart medication. Angelica is such a blessing and has already taught me so much. Praying for a good day with great pain control. 🙂

4 comments:

  1. Thanks for the updates on your sweet baby!

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  2. Amanda, I'm your brother in law Casey's sister and I want you guys to know that you are in my prayers everyday! I used to volunteer in the NICU at our children's hospital in KC so I can fully understand why it's a big deal to move to the patient floor as soon as possible! Some babies are in the ICU for months; at times it's only because they don't have strong family support to help them thrive after that step. Angelica has such a big, beautiful family to care for her, and I'm sure her recovery will keep chugging forward with the best of them! Keep taking care of yourself so that you are the best that you can be for her. God clearly blessed her when He chose you and Chris as her parents!
    Blessings and prayers to you all -
    Carrie

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  3. Thank you for letting us know how things are going. I can only imagine how many questions and phone calls you and Chris are receiving. Please know we are saying prayers for Angelica!! She is so incredibly strong ���� and special. I wish I could give her a big hug but for now I am sending well wishes. We are here for you and Chris, if you need anything at all! ��

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